Celiac Disease

Discussing the latest advances in celiac disease

November 24th, 2014 · 1 Comment

Bone Density

By Margaret Shepard

Bone density and celiac disease are back in the news again thanks to a recent study published in The Journal of Endocrinology and Metabolism.

Raul Ruiz Esponda, M. D., recently discussed the connection between bone density and celiac disease. Watch him talk about how important bone health is for people with celiac disease.

For more information about celiac disease, visit mayoclinic.org/celiacdisease.

Tags: bone density, celiac disease, Raul Ruiz Esponda

November 19th, 2014 · Leave a Comment

Gluten-Free Recipe: Ambrosia with Coconut and Toasted Almonds

By Margaret Shepard

Originally posted on mayoclinic.org.

This Southern classic is pretty and refreshing for dessert or as a snack.

Ingredients
1/2 cup slivered almonds
1/2 cup unsweetened flaked coconut
1 small pineapple, cubed
5 oranges, segmented
2 red apples, cored and diced
1 banana, halved lengthwise, peeled and sliced crosswise
2 tablespoons cream sherry
Fresh mint leaves for garnish

Directions
Preheat the oven to 325 F. Spread the almonds on a baking sheet and bake, stirring occasionally, until golden and fragrant, about 10 minutes. Transfer immediately to a plate to cool. Add the coconut to the sheet and bake, stirring often, until lightly browned, about 10 minutes. Transfer immediately to a plate to cool.

In a large bowl, combine the pineapple, oranges, apples, banana and sherry. Toss gently to mix well. Divide the fruit mixture evenly among individual bowls. Sprinkle evenly with the toasted almonds and coconut and garnish with the mint. Serve immediately.

Tags: Gluten Free, gluten free recipe, healthy living, recipe

November 11th, 2014 · Leave a Comment

Mayo Clinic Going Gluten-Free

By Margaret Shepard

Mayo Clinic Going Gluten-Free is a “backpack for survival” for those who have celiac disease and other related conditions, empowering patients to live productive lives,” said Joseph A. Murray, M.D. gastroenterologist and celiac disease expert at Mayo Clinic.

Dr. Murray discusses his recently published book that helps consumers learn how to manage a gluten-free lifestyle and live healthy lives.

To learn more about celiac disease, visit mayoclinic.org/celiacdisease.

Tags: celiac disease, Gluten Free, Joseph Murray, Mayo Clinic Going Gluten-Free

November 7th, 2014 · Leave a Comment

Betty E. Cornine's Patient Story

By Margaret Shepard

Originally posted on Sharing Mayo Clinic.

I am writing my story of celiac disease. I was diagnosed in March 2008, at the age of 73. I also want to tell my mother’s story. She passed away in 1945 at the age of 30; when I was only 9½ years old.

My mother was sick all her life. I remember her not being able to go anywhere because of diarrhea and being so very sick. At the last part of her sickness she was passing a lot of blood, and her legs were swelled so excessively. She had seen many doctors with no help. The last day they gave her penicillin, but it was too late. Back then, they would only give penicillin to the solider boys. They said she had a new disease!!!!

As we were growing up, my twin brother and I went to live with our grandparents. I was sick off and on my entire life. I married and had a son and daughter.

I suffered with diarrhea, hurting in my stomach, cramps and weight loss. When I gained some weight, I would say (jokingly), “I am going to keep this weight to get sick on.” There was not a clue of what was wrong with me. Tests were done but all they would come up with was irritable bowel syndrome and obstruction of the bile duct.

In the year 2000, I lost 21 pounds in two months. My local physicians couldn’t come up with any answers. I was sent to a specialist in September 2007; all kinds of tests were conducted such as lower and upper endoscopy, C.T. scans, capsule endoscopy and biopsies. Six of these tests were done in 4½ months. I had a lot of polyps the in lower colon removed; one was high grade pre-cancer cells. But, no answers to why I was so sick except an inflammation. They agreed they were missing something! I went back home, made several trips to the emergency room and hospital -- two times my blood pressure was 47/37. There were drastic changes in my eyes, and I went blind in both eyes. My eyes got some better in three weeks, and I could see the Big E. I was losing ground. Two minutes after I would start to eat, I would have diarrhea, and was so sick.

My husband’s health had been failing since 2006, and I was his caregiver. Our daughter and son got two ladies to come in to take care of him. The last trip I made to my local hospital in Missouri on March 14, 2008, my blood pressure was again 47/37. I didn’t think I was going to last very much longer and my doctor AGREED!!!

My symptoms worsened, but no one associated the food with being my problem. My daughter got an appointment for me at Mayo Clinic in Rochester, Minnesota. I left my local hospital on March 23, 2008, and my daughter and I left to go to Mayo Clinic immediately! It took us at least eight hours to get to the Mayo Clinic so my local doctor had suggested I drink Gatorade all the way there. We met with Dr. Glen Alexander at Mayo for the first time at the end of March 2008. After several tests were conducted, Dr. Alexander thought it was likely confirmed that I had collagenous sprue, a disease in which the immune system strikes the body (gluten intolerance). The small intestine is lined with hair-like projections, (called villi). The doctor at Mayo who was treating me said the villi were depleted completely. Then, Dr. Alexander told us that celiac disease was an auto-immune digestive disorder toxic reaction to gluten, which has an increased incidence in family members. When Dr. Alexander said it was more likely to occur in family members, my daughter looked at me, and we both were thinking the same thing -- “Now we know finally what was wrong with my mother when she died.” 63 years ago!!!! Also, the doctor told us what was wrong with my mother and the diseases she had as a child even though he had never met her. We were surprised that he was correct in telling us that she had scarlet fever.

Dr. Alexander gave me medication before I left Mayo Clinic. I have read that celiac disease is not usually treated with drugs, but mine was. When we left the Clinic my feet were swollen. I had worn size 7 women shoes, but we had to get a size 14 wide men’s shoe to come home in.

I was on the medication for one year, and called my doctor at Mayo Clinic every month to report in; he would always call me back and that meant so much to me. In March of 2010, it will be a year after stopping the medicine, (Endocort).

If I eat any gluten-containing substances, I get very sick, but I watch it like a hawk. I have a lot a pain from fibromyalgia and arthritis as well, but no help with that.

I know I won’t get over this celiac disease, but, I am thankful I have come so far from where I was two years ago.

Thanks to God, My Family, Friends, and Mayo Clinic doctors to get me this far!!!!

Sincerely, Betty E. Cornine

P.S. Note!! Please remember the three steps that could save your life:
Step 1 – Blood test;
Step 2 – Endoscopy and tissue biopsy;
Step 3 – Genetic testing

For more information about celiac disease, visit mayoclinic.org/celiacdisease.

Tags: celiac disease, patient story, Sharing Mayo Clinic

October 31st, 2014 · Leave a Comment

Gluten-Free Recipe: Apple-Fennel Slaw

By Margaret Shepard

An Apple-Fennel slaw is the perfect way to use apples freshly picked from the orchard. Fennel has a subtle licorice flavor that makes it a pleasing addition to this salad. Shop for crisp, white bulbs with bright green tops. Strip away outer leaves that are tough or browned.

Ingredients
1 medium-sized fennel bulb, thinly sliced
1 large Granny Smith apple, cored and thinly sliced
2 carrots, grated
2 tablespoons raisins
1 tablespoon olive oil
1 teaspoon sugar
1/2 cup apple juice
2 tablespoons apple cider vinegar
4 lettuce leaves
Directions
In a large bowl, combine the fennel, apple, carrots and raisins to make the slaw. Drizzle with olive oil, cover and refrigerate.

In a small saucepan, mix together the sugar and apple juice. Place over medium heat and cook until reduced to about 1/4 cup, about 10 minutes. Remove from the heat and cool. Stir in the cider vinegar. Pour the apple juice mixture over the slaw and stir to combine well. Chill thoroughly. Serve on lettuce leaves.

Recipe originally posted on mayoclinic.org.

Tags: Gluten Free, gluten free recipe, healthy living

October 24th, 2014 · Leave a Comment

Celiac Disease Biomarkers and Neurology

By Margaret Shepard

A recently published article in Neurology explores the neurologic significance of celiac disease biomarkers. Andrew McKeon, M.B., B.Ch., M.D., explains the main take-aways of the article:

  • In patients with celiac disease, neurological disorders that develop are diverse in their presentation and may be caused by nutritional deficiency due directly to celiac or a coexisting autoimmune disorder of the nervous system, or by other things (some of which may be unrelated to celiac disease). In some patients gluten free diet helps. For some of those patients diet heals the gut, which stops the nutritional deficiency, which in turn stops the neurological problem. In a minority of other patients gluten free diet helps but the mechanism by which this happens is not known. It has been hypothesized that gluten directly triggers CNS inflammation, but this is unproven. The Tg6 antibody is not a sensitive or specific marker of this.
  • Positivity for old-fashioned gliadin antibodies in patients without celiac disease are of dubious gastrointestinal and neurological significance.

Read the full article online here.

For more information on celiac disease, visit mayoclinic.org/celiacdisease.

Tags: Andrew McKeon, biomarkers, celiac disease, neurology

October 15th, 2014 · Leave a Comment

Celiac Disease and the Brain

By Margaret Shepard

Could celiac disease be connect to the brain? A recent New York Times article takes on that topic. The article states,

"But as antibodies specific to tissues beyond the gut have come to light, some now suspect that the autoimmune firestorm ignited in the gut may descend on other organs, including the brain. This idea, which remains hypothetical, has gained traction during a time of progress in understanding autoimmune diseases of the central nervous system."

Read the full article here.

For more information about celiac disease, visit mayoclinic.org/celiacdisease.

Tags: brain, celiac disease, neurology, New York Times

October 9th, 2014 · Leave a Comment

Gluten and Infants

By Margaret Shepard

Joseph Murray M.D., a Mayo Clinic gastroenterologist and celiac disease expert, reacts to two studies on gluten and infants published October 2, 2014 in the New England Journal of Medicine.

For more information about celiac disease, visit mayoclinic.org/celiacdisease.

Tags: celiac disease, gluten, Joseph Murray

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