This paper addresses the question of how come some people with celiac disease don't get diagnosed. There are well established guidelines regarding who to test for celiac disease and how to test for celiac disease. Most patients, over 80%, with celiac disease remain undiagnosed in the United States. The researchers of this paper recruited over 100 individuals in the community who had some recognized risk for celiac disease such as family history or other associated conditions or symptoms. The researchers aimed to explore how come these patients had not be tested for celiac disease and what were the barriers to testing.
The major barriers to testing found were:
- The patients didn't know they were at risk for celiac disease.
- The patients didn't know where or how to get tested.
There were some particular associations with the patients:
- Low income
- Lack of a primary doctor
- No health insurance
It is important to reach out to all patients who may be a risk for celiac disease and help them understand the risks of celiac disease and how they can get tested.
Read the full study online here.
For more information on celiac disease, visit mayoclinic.org/celiacdisease.
Dr. Murray is a gastroenterology and celiac disease expert at Mayo Clinic.